Using a Structured, Computer-Administered Questionnaire for Evaluating Health-Related QOL with Chronic Lower Extremity Wounds
- Fri, 9/11/09 - 4:14pm
- 0 Comments
- 4779 reads
Abstract: Patients with chronic wounds of the lower extremity (CWLEs) often experience functional disability and emotional distress; incorporating health-related quality of life (HRQoL) measurements in clinical practice may improve understanding of chronic wound patients’ healthcare needs. A computer-administered instrument that measures HRQoL variables in patients with CWLEs was developed to overcome common limitations to assessing HRQoL in this population. Face validity of the questionnaire variables assessing physical, social, emotional, and functional well-being was obtained and a computer application to display the structured questionnaire on an electronic kiosk with touch-screen interface was developed. All patient responses are stored in the clinic’s electronic health record system (EMR systems). To evaluate use of this system in a wound care clinic, 66 consecutive patients were asked to complete the questionnaire; of those, 64 participated. Internal consistency of the instrument across responses was estimated by the Kuder-Richardson formula 20 as 0.79. None of the patients requested help completing the questionnaire or working with the touch-screen interface. Patients most frequently reported frustration (63%), trouble sleeping (48%), anxiety (42%), and impaired mobility (41%), confirming that CWLEs negatively affect patient quality of life. These findings suggest that additional validation and reliability studies, including research to evaluate the relationship between HRQoL, protocols of care, and wound outcomes, are warranted.
Key Words: healthcare quality, electronic records, evaluation, quality of life, wounds and injuries
Please address correspondence to Thomas I. Sherman, 100 Leverington Avenue, PH 15, Philadelphia, PA 19127; email: tis26@drexel.edu.
The lived experience of chronic wounds evokes powerful emotional issues; more than 25% of patients report symptoms of depression or anxiety.1,2 In a large sociodemographic study3 of 120 patients with venous ulceration, 16% were out of work and 49% were disabled in terms of work tasks. Notwithstanding these circumstances, most clinical assessments of wound healing focus on healing rates and/or morbidity (eg, delayed epithelialization, limb loss, and/or infectious complications). Assessment of functional status and quality of life is fundamental to the care of patients with chronic wounds of the lower extremity (CWLEs) and should not be overlooked.
Health-related quality of life (HRQoL) evaluations examine the psychosocial stresses faced by patients with chronic conditions. HRQoL assessments offer important information throughout the wound care continuum because efforts to improve quality of life and relieve suffering are integral to all wound treatment regimens. The importance of quality of life measurement for patients with CWLEs is gaining recognition.4-6 However, as with other areas of healthcare, progress in this area has not been accompanied by widespread implementation and testing for several reasons.
1. Jones J, Barr W, Robinson J, Carlisle C. Depression in patients with chronic venous ulceration. Br J Nurs. 2006;15(11):S17–S23.
2. Snyder RJ. Venous leg ulcers in the elderly patient: associated stress, social support, and coping. Ostomy Wound Manage. 2005;52(9):58–68.
3. Abbade LP, Lastoria S, de Almeida Rolla H, Stolf HO. A sociodemographic, clinical study of patients with venous ulcer. Int J Dermatol. 2005;44:989–992.
4. Price P, Harding K. Cardiff Wound Impact Schedule: the development of a condition-specific questionnaire to assess health-related quality of life in patients with chronic wounds of the lower limb. Int Wound J. 2004;1(1):10–16.
5. Vileikyte L, Peyrot M, Bundy C, Rubin R, Leventhal H. The development and validation of a neuropathy- and foot ulcer-specific quality of life instrument. Diabetes Care. 2003;26(9):2549–2555.
6. Goodridge D, Trepman E, Sloan J, Guse L, Strain LA, McIntyre J, Embil JM. Quality of life in adults with unhealed and healed diabetic foot ulcers. Foot Ankle Int. 2006;27(4):274–280.
7. Dijkers M. Measuring quality of life: methodological issues. Am J Phys Med Rehabil. 1999;78:286–300.
8. Boissonnault WG, Badke MB. Collecting health history information: the accuracy of a patient self-administered questionnaire in an orthopedic outpatient setting. Phys Ther. 2005;85(6):531–543.
9. Gilkison CR, Fenton MV, Lester JW. Getting the story straight: evaluating the test-retest reliability of a university health history questionnaire. J Am Coll Health. 1992;40:247–252.
10. Collen MF, Cutler JL, Siegelaub AB, Cella RL. Reliability of a self-administered medical questionnaire. Arch Intern Med. 1969;123:664–681.
11. Bachman JW. The patient-computer interview: a neglected tool that can aid the clinician. Mayo Clin Proc. 2003;78(1):67–78.
12. Slack WV. The computer and the doctor-patient relationship. MD Comput. 1989;6(6):320–321.
13. Houziaux MO, Lefebvre PJ. Historical and methodological aspects of computer-assisted medical history-taking. Med Inform. 1986;11(2):129–143.
14. DiLillo D, DeGue S, Kras A, Di Loreto-Colgan AR, Nash C. Participant responses to retrospective surveys of child maltreatment: does mode of assessment matter? Violence Vict. 2006;21(4):410–424.
15. DeLeo JM, Pucino F, Calis KA, Crawford KW, Dorworth T, Gallelli JF. Patient-interactive computer system for obtaining medication histories. Am J Hosp Pharm. 1993;50(11):2348–2352.
16. Brown A. Chronic leg ulcers, Part 2: Do they affect a patient’s social life? Br J Nurs. 2005;14(18):986–989.
17. Persoon A, Heinen MM, van der Vleuten CJ, de Rooij MJ, van de Kerkhof PC, van Achterberg T. Leg ulcers: a review of their impact on daily life. J Clin Nurs. 2004;13:341–354.
18. Handler T, Holtmeier R, Metzger J, et al. HIMSS electronic health record definitional model. Healthcare Information and Management Systems Society. June 2003. Available at: www.himss.org. Accessed June 24, 2008.
19. National Institutes of Health National Center for Research Resources. Electronic health records overview. April 2006. Available at: www.ncrr.nih.gov/CRinformatics/EHR.pdf. Accessed June 20, 2008.
20. Billinghurst M, Savage J, Oppenheimer P, Edmond C. The expert surgical assistant: an intelligent virtual environment with multimodal input. In: Weghorst S, Sieburg H, Morgan K. Medicine Meets Virtual Reality IV: Health Care in the Information Age. Amsterdam, The Netherlands: IOS Press;1996:590–607.
21. Nielsen J. Usability Engineering, 1st ed. San Francisco, CA: Morgan Kaufmann;1993: 26–27.
22. Department of Health and Human Services. Office of the Secretary. Health insurance reform: modifications to Electronic Data Transaction Standards and Code Set. Washington, DC: Department of Health and Human Services. Available at: www.hhs.gov/ocr/hipaa/. Accessed June 10, 2008.
23. Guyatt GH, Feeny DH, Patrick DL. Measuring health-related quality of life. Ann Intern Med. 1993;118(8):622–629.
24. Briggs M, Closs SJ. Patient’s perceptions of the impact of treatments and products on their experience of leg ulcer pain. J Wound Care. 2006;15(8):333–337.
25. Brod M. Quality of life issues in patients with diabetes and lower extremity ulcers: patients and caregivers. Qual Life Res. 1998;7(4):365–372.
26. Franks PJ, Moffatt CJ. Who suffers most from leg ulceration? J Wound Care. 1998;7(8):383–385.
27. Hareendran MA, Bradbury A, Budd J, et al. Measuring the impact of venous leg ulcers on quality of life. J Wound Care. 2005;14(2):53–57.
28. Hyland ME, Ley A, Thompson B. Quality of life of leg ulcer patients: questionnaire and preliminary finds. J Wound Care. 1994;3(6):294–298.
29. Keeling D, Price P, Jones E, Harding KG. Social support for elderly patients with chronic wounds. J Wound Care. 1997;6(8):389–391.
30. Neil JA, Munjas BA. Living with a chronic wound: the voices of sufferers. Ostomy Wound Manage. 2000;46(5):28–38.
31. Philips T, Stanton B, Provan A, Lew R. A study of the impact of leg ulcers on quality of life: financial, social, and psychologic implications. J Am Acad Dermatol. 1994;31(1):49–53.
32. Walshe C. Living with a venous leg ulcer: a descriptive study of patients’ experiences. J Adv Nurs. 1995;22(6):1092.
33. Schabetsberger T, Ammenwerth E, Andreatta S, et al. From a paper-based transmission of discharge summaries to electronic communication in health care regions. Int J Med Inform. 2006;75(3-4):209–215.
34. Roukema J, Los RK, Bleeker SE, et al. Paper versus computer: feasibility of an electronic medical record in general pediatrics. Pediatrics. 2006;117(1):15–21.
35. Green CJ, Fortin P, Maclure M, Macgregor A, Robinson S. Information system support as a critical success factor for chronic disease management: necessary but not sufficient. Int J Med Information. 2006; 75(12):818–828.
36 Smith D, Newell LM. A physician’s perspective: deploying the EMR. J Healthc Inform Manage. 2002;16(2):71–79.
37. Rollman BL, Hanusa BH, Gilbert T, Lowe HJ, Kapoor WN, Schulberg HC. The electronic medical record. Arch Intern Med. 2001;161(2):189–197.
38. Institute of Medicine Committee to Design a Strategy for Quality Review and Assurance in Medicine, Lohr KN (eds). Medicare: A Strategy for Quality Assurance/Committee to Design a Strategy for Quality Review and Assurance in Medicare, Division of Health Care Services, Institute of Medicine. Vol. 1: Report of a Study. Washington, DC: National Academy Press;1990:468.
39. Miller RH, West C, Brown TM, Sim I, Ganchoff C. The value of electronic health records in solo or small group practices. Health Affairs. 2005;24(5):1127–1137.
40. Pennachio DL. Expense survey: what to spend, what to cut. Med Econ. 2005;82(2):58–61.
41. Brailer DJ. Health information technology is a vehicle, not a destination: a conversation with David J. Brailer. Health Affairs. 2007;26(2):236–241.
42. Porter ME, Teisberg EO. Redefining Health Care: Creating Value-based Competition on Results, 1st ed. Boston, MA: Harvard Business School Publishing;2006:229–281.
43. The National Quality Forum. Serious Reportable Events in Healthcare: A Consensus Report. National Forum for Health Care Quality Measurement and Reporting. Washington, DC. Available at: www.qualityforum.org. Accessed July 8, 2008.






Post new comment