Patient Perceptions and Provider Documentation of Diabetes Care in Rural Areas

Author(s): 
Karen Zulkowski, DNS, RN, CWS; Patricia Coon, MD

This study was funded by an Administration on Aging Grant, No. 90-AM-2304.

D iabetes is a chronic disease that requires continuous treatment, including adequate glycemic, blood pressure, and lipid control, to prevent complications. Studies have repeatedly demonstrated that adequate management reduces the risks of macrovascular and microvascular complications.1,2 These complications (eg, retinopathy, nephropathy, neuropathy, and cardiovascular disease) significantly increase cost of care and result in higher mortality and morbidity for people with diabetes.3,4

Recent advances in diabetes care and treatment of complications are frequently reported in the literature. Best practice guidelines have been developed.5,6 Consequently, healthcare providers need to stay up-to-date and apply current guidelines to their medical practice. People with diabetes also must assume responsibility for day-to-day control of the disease, making dietary and lifestyle changes, obtaining needed preventive services, being aware of the signs and symptoms of possible complications, and understanding the purpose and use of their prescribed medications.7 For rural persons with diabetes, this may be more complicated because endocrinologists, dietitians, diabetic educators, and other sources of medical information may be geographically distant.8

Measures of effective diabetes management have included either provider adherence to best practice guidelines or clinical indicators such as laboratory values.9 These offer insight into the clinical picture from the provider’s viewpoint but leave out the patient perspective. Adherence to care needs to be examined as a multivariate construct that looks globally at behavioral components, such as knowledge and beliefs held by the person with diabetes and provider components that focus on use of current treatment guidelines.5,6 To address this shortfall of information, a study was designed to 1) determine congruence between rural patient self-reported and provider-documented information on American Diabetes Association (ADA) recommended guidelines for measurement and control of HgA1c, blood pressure, lipid levels, and appropriate preventive services (see Figure 1,5,6 2) examine patient-identified barriers to care, including knowledge deficits that prevent effective disease management, and 3) describe health and lifestyle characteristics of rural persons with diabetes.

Methods

A descriptive study containing baseline data from a larger, ongoing intervention study designed to improve provider adherence with ADA guidelines and patient knowledge was conducted by Deaconess Billings Clinic Center on Aging researchers in rural Montana communities.10 Provider-documented data abstracted from outpatient medical records was paired with patient’s self-reported information obtained from a questionnaire.

Patient inclusion criteria. All persons 45 years of age or older, diagnosed as having type 2 diabetes and managed by a healthcare provider at one of four rural healthcare clinics between January 1, 1999 and August 1, 2000 were eligible to participate. Diagnosis was established through provider documentation of type 2 diabetes in the medical record.

Provider background. The study included healthcare providers practicing in four rural communities in Montana. Rural clinic sites were well established in their communities and had remained consistent at these sites for several years. Each rural site had one to eight primary care providers, including internal medicine and family practice physicians and physician assistants. No nurse practitioners were employed at the rural clinic sites.

References: 

1. Baldeweg SE, Yudkin JS. Implications of the United Kingdom prospective diabetes study. Prim Care. 1999;26(4):809–827.
2. Moss SE, Klein R, Klein BE, Meuer SM. The association of glycemia and cause-specific mortality in a diabetic population. Arch Intern Med. 1994;154(21):2473–2479.
3. Group TDCaCTR. The effect of intensive treatment of diabetes on the development and progression of long-term complications in insulin-dependent diabetes mellitus. The Diabetes Control and Complications Trial Research Group. N Engl J Med. 1993;329(14):977–986.
4. Blonde L, Dey J, Testa MA, Guthrie RD. Defining and measuring quality of diabetes care. Prim Care. 1999;26(4):841–855.
5 American Diabetes Association. Standards of medical care for patients with diabetes mellitus. Diabetes Care. 1999;23(Suppl 1):S32–S42.
6. American Diabetes Association. Standards of medical care for patients with diabetes mellitus. Diabetes Care. 2000;23(Suppl 1):S32–S42.
7. Lawler FH, Viviani N. Patient and physician perspectives regarding treatment of diabetes: compliance with practice guidelines. J Fam Pract. 1997;44(4):369–373.
8. Educators AAoD. AADE’s Standards for outcomes measures. Available at: http://www.aadenet.org/DiabetesEducation/ Outcome/AADEStandardsofmeasure.html. Accessed November 1, 2004.
9. Johnson SB. Methodological issues in diabetes research. Measuring adherence. Diabetes Care. 1992;15(11):1658–1667.
10. Coon P, Zulkowski K. Adherence to American Diabetes Association standards of care by rural health care providers. Diabetes Care. 2002;25(12):2224–2229.
11. Lawton M, Brody E. Assessment of older people: self-maintaining and instrumental activities of daily living. Gerontologist. 1969;9:179–186.
12. Initiative NS. Determine your nutritional health. Available at: http://www.aafp.org/nsi.xml. Accessed November 1, 2004.
13. Ware J, Kosinski M, Turner-Bowker D, Gandek B. How to Score Version 2 of the SF-12 Health Survey. Lincoln, RI: Quality Metric Incorporated;2002.
14. Graham KY, Longman AJ. Quality of life and persons with melanoma. Preliminary model testing. Cancer Nurs. 1987;10(6):338–346.
15. Center MDaRT. Diabetes knowledge test. Available at: http://www.med.umich.edu/mdrtc/survey/index/htmlAccessed November 1, 2004.
16. Bureau USC. Demographic data. Available at: www.census.gov/index.html. Accessed November 1, 2004.
17. Heisler M, Smith DM, Hayward RA, Krein SL, Kerr EA. How well do patients’ assessments of their diabetes self-management correlate with actual glycemic control and receipt of recommended diabetes services? Diabetes Care. 2003;26(3):738–743.
18. Rose M, Fliege H, Hildebrandt M, Schirop T, Klapp BF. The network of psychological variables in patients with diabetes and their importance for quality of life and metabolic control. Diabetes Care. 2002;25(1):35–42.
19. Meltzer D, Egleston B. How patients with diabetes perceive their risk for major complications. Eff Clin Pract. 2000;3(1):7–15.
20. McFarlane SI, Jacober SJ, Winer N, et al. Control of cardiovascular risk factors in patients with diabetes and hypertension at urban academic medical centers. Diabetes Care. 2002;25(4):718–723.
21. Zulkowski K, Paul L, Weinert C. Nutritional status of rural elderly: a USDA grant data. 2003. Unpublished data.
22. Force uSPST. Guide to Clinical Preventative Services 3rd Edition. Available at: http://www.ahrq.gov/clinic/prevnew.html. Accessed November 1, 2004.



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